10 million people have hearing loss in France today.
Hearing aids and cochlear implants provide invaluable support but there is currently no cure and there is some way to go before we can fully understand these disorders and offer much-needed solutions.
Accelerating hearing research
With the “For Research” program, Fondation Pour l’Audition aims to accelerate breakthroughs in hearing health by encouraging research and scientific innovation:
- By supporting French research laboratories in the field of hearing health through calls for proposals, scientific prizes and open requests,
- By sponsoring the creation of the Hearing Institute in Paris, the first multidisciplinary hearing science research center, bringing together the world’s best scientific and medical teams to advance research and develop new solutions.
AN INTERNATIONALLY RENOWNED SCIENTIFIC BOARD
To carry out these different tasks, the Fondation Pour l'Audition relies on an international scientific council that meets several times a year.
This council reviews the strategic scientific orientations, identifies the best research projects in otology and audiology received in the framework of the annual calls for projects and gives its opinion on the scientific projects led by the Fondation Pour l'Audition team.
Each year, it proposes to the Board of Directors the research projects and the young researchers, clinicians and students to be financed. It is chaired by Professor Karen Avraham (Israel) and is composed of :
- Dr Bastian Epp (Denmark),
- Doctor Frank R. Lin (USA),
- Professor Lawrence R. Lustig (United States),
- Professor Brigitte Malgrange (Belgium),
- Professor David R. Moore (USA),
- Dr. Jonathan Peelle (USA),
- Dr. Gabrielle H. Saunders (United Kingdom),
- Professor Thierry van den Abbeele (France),
- Professor Cécile Parietti-Winkler (France).
PARTICIPATing IN RESEARCH ON USHER SYNDROME
In addition, the “For Research” program is participating in the LIGHT4DEAF research project on Usher syndrome, a rare genetic disease combining hearing loss, impaired vision and sometimes balance problems. This unprecedented project is supported by the French Government’s Investissements d’Avenir program.
Coordinated by Prof. José-Alain Sahel, Director of Institut de la Vision and Fondation Voir & Entendre, this five-year project is mobilizing a multidisciplinary team of scientists, doctors and health professionals in a joint effort to limit this multisensory disability.
Responsible for the working group on communication, Fondation Pour l’Audition is developing communications for patients and their families, health professionals and consumers. Targeted information (on the disease, treatment, research, etc.) is available on an accessible, content-rich website www.usherinfo.fr, as well as on social networks, through organized awareness-raising events and scientific dissemination (patient symposiums, public conferences and information/discussion groups).